Families and Caregivers
Introduction for Families and Caregivers
Supporting a loved one who is experiencing changes in memory, attention, problem solving, emotional health, or daily functioning can be both meaningful and challenging. Families often carry the weight of uncertainty long before a formal evaluation occurs, and it is common to feel unsure of how to help or what steps to take next. This page is meant to guide you through the process, offer clarity about your role, and ensure you feel supported from start to finish.
What to Expect : The Three Steps of a Neuropsychological Evaluation
Initial Clinical Interview
Neuropsychological Testing
This stage involves standardized tests that measure areas such as memory, attention, problem solving, language, and reasoning. All testing is completed in person to ensure accuracy. Sessions last several hours with breaks available whenever needed. Instructions are explained clearly, and the pace is adjusted to keep you comfortable and supported throughout the process.
Feedback Session
After testing is complete, Dr. Bialkowski analyzes the results and prepares a written report. Within about two weeks, you meet in person or virtually to review the findings together. Dr Bialkowski explains the results in clear language, discusses strengths and challenges, and reviews all recommendations. Family members or caregivers may join if you wish. You will also receive a copy of the report to share with your medical providers or anyone else involved in your care.
- Caregiver Guidance
Caregiver Guidance
Supporting someone who is experiencing changes in memory, thinking, mood, or behavior can feel confusing and emotionally difficult. Families are often the first to notice patterns or subtle shifts that the patient may not recognize. These observations play an important role in understanding what is happening and help create a complete picture of daily functioning. A neuropsychological evaluation is at its best when both the patient’s perspective and the caregiver’s perspective are included.
Your involvement provides clarity. Your voice is valued. Your insight often helps guide meaningful next steps.
Before the Evaluation
If you are concerned about changes in a loved one, you may find it helpful to note specific examples before the appointment. Small patterns can be surprisingly meaningful. This might include missed appointments, increased repetition, new difficulties following conversations, changes in judgment or problem solving, or shifts in mood such as anxiety, irritability, or withdrawal.
Gathering important documents such as medical records, medication lists, or prior imaging can also be helpful. Caregivers can support the patient by offering reassurance and helping them feel comfortable about the evaluation. Remind them that the purpose of testing is understanding, not passing or failing, and that everyone shows strengths and weaknesses.
If the patient wishes, caregivers may join the initial interview in person or virtually. Your presence can help provide history that the patient may struggle to recall and can ease any anxiety the patient might feel about the process.
During Testing
Testing is conducted one-on-one in a quiet, structured setting to ensure accuracy and minimize distractions. The appointment may last several hours. Fatigue is normal and breaks are offered whenever needed. The pace is adjusted to the patient’s level of comfort and ability.
Caregivers do not participate in the testing session, although you may remain nearby if your presence helps the patient feel supported. The goal of testing is not to measure intelligence or assign labels. It is to understand how the brain is working and what may be contributing to changes in daily life.
If the patient would like you to attend the feedback meeting, you are welcome to join. Hearing the results directly often helps families understand the recommendations more clearly and allows everyone to move forward with shared knowledge.
After the Evaluation
The neuropsychological report serves not only as a clinical document but also as a practical guide for patients and families. It explains strengths and challenges in clear language and offers recommendations that address daily functioning, safety, independence, and emotional well-being. Families often find relief in having structure and explanation for changes they have struggled to understand.
The feedback session is an opportunity to ask questions and discuss next steps. It may help clarify concerns about driving, medication management, financial oversight, or transitions in care. Caregivers often leave this meeting with a sense of direction and a better understanding of how to support their loved one.
The Role of Caregivers in Advocacy
Caregivers are often the ones who carry important information forward into medical appointments, daily routines, and long-term planning. You play a central role in helping the patient apply recommendations, communicate with healthcare providers, and navigate changes over time.
Advocacy does not mean assuming responsibility for every decision or solving every challenge. It means being an informed, compassionate partner in care. Dr. Bialkowski works collaboratively with caregivers so that you feel supported rather than overwhelmed or alone.
Supporting Yourself as a Caregiver
Caring for someone with cognitive or emotional changes can be exhausting and emotionally draining. It is normal to feel worry, frustration, or fatigue. Supporting your own well-being is not only healthy but essential for sustainable caregiving. Many caregivers benefit from counseling, support groups, respite services, or community resources that offer emotional relief and practical strategies.
Taking care of yourself allows you to continue caring for others with patience, balance, and compassion.